Our Type 1 Diabetes Diagnosis

When I left you in our last post, we had just learned that Baby had Type 1 Diabetes, and our family would not be moving to Okinawa, Japan.

There was still a lot in the air, would Paul go without us? What would happen to us if he did? What did this diagnosis mean? What about the dogs (who we shipped to Japan in April)? And the stuff the movers just picked up to ship to Japan? We were scheduled to move out of our house in a few weeks, we had plans to sell our cars, we had potential buyers for both.

First I’ll start with Baby’s diagnosis. Type 1 Diabetes. It’s not something we could have prevented. It’s different from the diabetes that you develop later in life, often as a result lifestyle choices. This had nothing to do with what he ate, or how he spent his first year of life. It just happened. His pancreas stopped producing insulin. Likely his pancreas has been slowly dropping in this function for months. Some of the symptoms from decreased insulin are also symptoms that tie in with growing babies, like increased hunger, decreased sleep. These are things that you wouldn’t rush off to the doctor for. But even if we had, even if 4 months ago a doctor had told us that Baby’s pancreas wasn’t doing as well as it was supposed to be doing, there is nothing that would have ‘fixed’ it. This was pretty much inevitable.

So now we found ourselves in the hospital, trying wrap our heads around this diagnosis, and answer all the questions I listed above. I think the stress of figuring out all of the stuff about our move to Japan, sort of overshadowed the diagnosis. Not in a bad way, but in that we didn’t go straight into heartbreak, we weren’t devastated. Our first step was to swiftly go into action to try to deal with our move.

In short we were able to quickly get enrolled in EFMP, which allowed us to speed up the process of getting Baby officially medically disqualified from moving to Okinawa. This disqualification, although depressing, was vital to our goal of having Paul’s orders to Okinawa modified so no one would have to move. We also had to figure out the situation with the dogs. I haven’t talked much about it on social media, but in April we made the decision to send the dogs in advance to Okinawa, so they would be there when we arrived. Most airlines have a heat embargo during the summer from late May-late September. They do not allow snub nosed dogs to fly at all. This is because they overheat easier, thus it’s more dangerous for them to fly. I immediately got to work with our transport company to get the dogs back to America if we had time, because they had already embarked on the most expensive Japanese vacation any dog has ever had. Time wasn’t on our side though and we were only able to get one dog on a last minute flight before the heat embargo, so the other is being kept with the dog transport until she can fly again. It’s not a perfect situation, but it’s the safest for her.

By the time we got all of the above figured out, we had already begun to work on a routine, we had already had our ‘crash course’ in T1 Diabetes management. We were fast learning about insulin, glucose, testing Baby’s blood, checking for ketones, how to properly do injections, how to use an insulin pump, and how to count carbs. We had a few setbacks, we had some really high highs and some lows, but after 9 days we were discharged from the hospital. I really have nothing but positive things to say about the hospital. We had great doctors and nurses, we met some great people, and we are positive about Paul’s future. We have been told over and over, because he is so young, and we are able to establish his care properly, he will never know what life is like before diabetes. Although things seem difficult now, his life should be easier because this happened while he was so young, versus it happening in 5 or 10 years.

We are now home, establishing our new normal, and learning how to keep everyone healthy. We have had a few setbacks, but we are back on track this week.  We have been working on putting our home back together, it took a while but we were able to get our stuff that was packed up the morning of his initial hospital trip back, before it left for Japan.  Baby Paul had his first birthday a couple weeks ago, and he got more toys and clothes than he could ever imagine.

We are still learning, but we will continue to do our best.

We aren’t moving to Okinawa

 

We were supposed to fly to Okinawa next week. We had planned, gone through all the screenings, gotten passports and airplane tickets, we were ready. A couple of weeks ago, on a Monday morning, the movers came to pack our unaccompanied baggage, which is the stuff we wanted there when we got there. Before this we had all been sick, for about 2 weeks all 4 of us had been fighting a nasty cold. That day baby Paul was really fussy, but he was sick like the rest of us. As the day wore on, the movers came and left with about a quarter of our belongings, the baby seemed okay just cranky.

Later in the afternoon everyone was resting and I took the baby outside to play and I noticed he was randomly gagging, sort of dry heaving. I decided he should nap too. While trying to get him to sleep Paul noticed he was breathing rapidly, shortly after I couldn’t get him to latch on to breastfeed. This was the most concerning symptom because he’s never in his life refused the breast, but it was like he couldn’t latch because he was struggling to breathe.

I rushed him to the ER. I believe they thought he had RSV, he was immediately given a nebulizer, IV fluids and a chest x-ray, which came back normal. The next step was the doctor tested his blood sugar. At that point the doctor told me I needed to call my husband because my baby was going to need to be transferred to the pediatric ICU at the larger medical facility about an hour away. They said he was in Diabetic Ketoacidosis. I didn’t really know what any of this meant, except that he almost surely had Type 1 Diabetes, and if that were true everything was about to change.

Within a few hours we were in an ambulance being transferred to the hospital. Baby was stable but his blood sugar was still way too high, and he still had a huge amount of ketones in his blood, which were basically poisoning his kidneys and liver from what I understand. Once we got to the ICU we quickly met several doctors and nurses which told us there was almost no question he had Diabetes. We spent all night testing babys blood sugar hourly, checking the levels for ketones, and adjusting his insulin and glucose dosages. The first night they wouldn’t let me breastfeed him because they needed to be in control of his glucose and insulin while they rid his body of the ketones that were poising his blood. It was a very long night with pretty much no sleep.

The next few days are a blur. He was officially diagnosed with Type 1 (T1) Diabetes, and we rushed to get him enrolled in the military program that helps our family when we have a family member with special needs; EFMP– Exceptional Family Member Program, we needed to be enrolled so we could try to stop our move to Okinawa because they do not have the military medical professionals on the island to treat insulin dependent diabetes.  We knew right away, with Baby’s diagnosis the kids and I would not be moving, but we were desperately trying to make it so Paul wouldn’t have to go without us.

So that’s why we aren’t moving to Okinawa. I am still very sad, for a lot of reasons. I’ll write another post and finish the story later this weekend. I need to dry my eyes and drink some coffee right now. I’ll leave you with a picture of my precious little boy, being a brave dude with his little robot arm, that protected the only IV line that he didn’t blow out the first few days in the hospital.

Our Newest Adventure!

I’ve been MIA for quite a while now. But I have a good reason.

New Paul

It has now been a month since we welcomed Baby Paul into our lives.  We are slowly adjusting to having a new baby in the house, and another little person to care for. It’s been… Busy.

I have spend much of the last 4 weeks resting, this recovery has been harder than I remember it being with Evey. I’ve had a few bumps in the road that I didn’t have with Evey. At about 2 weeks postpartum I experienced some extremely heavy bleeding and was diagnosed with postpartum hemorrhage, mine seems to be mild compared to things I have read, and thankfully didn’t require hospitalization, but it has slowed down my recovery quite a bit.  I think this week I’ve turned a corner and things are finally starting to feel better, but still far from normal. I’m hoping to get the all clear at my 6 week checkup coming up here soon.

With Evey we are working on our patience, helping Evey adjust to not being the center of attention anymore. She has always been pretty independent, but it’s certainly been an adjustment for her too.She hasn’t really been “acting out” but more just not listening and not following directions. But having a new baby is going to take some time to get used to for all of us, and she is doing well I think… most of the time. She loves being a sister though, she loves “her baby” as she calls him.

We are getting into a grove though, things are settling in and I hope to be back to normal soon. Well our new normal as a family of 4.

Evelyn Update 2.5 years!

We are long overdue for a Tiny Tamale update. I want to say not much has changed, but looking at pictures from the last few months I know that is not true. I tried to select a few of my favorite photos of her from the last few months. I know I have many readers, family and friends, who are Evey fans, so I will try to make these more frequent. Recently there have been less pictures because Evey is potty training and she is frequently not wearing pants. So no pictures. But I will work on more frequent Evey updates filled with cute photos.

I have been doing my best to teach her healthy eating habits, she loves fruit, particularly oranges and berries (all berries.)

Evey Loves Oranges 3.19.15
Evey Loves Oranges 3.19.15

We try to make frequent beach trips. Gotta get that vitamin D!

Beach Day 3.30.15
Beach Day 3.30.15
Beach Day 3.30.15
Beach Day 3.30.15

When she is dressed she is well dressed. A fashionista if you will.

Fancy Pants 4.3.15
Fancy Pants 4.3.15
Cute as a button 4.7.15
Cute as a button 4.7.15
Family Nap 4.10
Family Nap 4.10
Funny Faces 4.14.15
Funny Faces 4.14.15
Daddy loves his girl 4.15.15
Daddy loves his girl 4.15.15

Daddy recently finished up a very important course. Evey got to attend his graduation

Gunny Course Graduation
Gunny Course Graduation

One of Evey’s favorite activities is going to the playground.

Playground 4.26.15
Playground 4.26.15

Evey’s first haircut (not by mom) was a huge milestone in May.

First Haircut! 5.9.15
First Haircut! 5.9.15

We ventured to Arizona for a couple days in May as well.

Target! 5.12.15
Target! 5.12.15
Sleepy time 5.13.15
Sleepy time 5.13.15
With Papa 5.11.15
With Papa 5.11.15

Remember what I said about eating healthy? We eat fun too…

Onion Rings! 5.17.15
Onion Rings! 5.17.15

Really Fun

Ice Cream! 5.22.15
Ice Cream! 5.22.15

Evey is a very happy little girl, and she is very good at finding silly ways to make people laugh, I think she gets that from her dad.

BWW after some geocaching 5.25.15
BWW after some geocaching 5.25.15

She still falls asleep in “the big bed” most nights, but she gets moved into her bed and usually stays there until she wakes me up asking for bananas at dawn.

Silly Sleeps 5.28.15
Silly Sleeps 5.28.15

She is quite the character always.

Silly goose 6.10.15
Silly goose 6.10.15
Playground 6.11.15
Playground 6.11.15
“hiding” 6.12.15

We got her a water table this weekend, just in time for her half birthday. And it’s the best thing ever.

IMG_6677
Pirate Ship 6.14.15
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6.14.15

Until she started waterboarding her pirate.

See that pirate under the water spout? 6.14.15
See that pirate under the water spout? 6.14.15
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“the pirate will tell me all her secrets” 6.14.15
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“she will give me the information I want!” 6.14.15
DSC_0343
“Or the torture will continue” 6.14.15
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Mischievous grin 6.14.15

But she’s still my silly little girl

hanging out in the laundry basket with the iPad 6.15.15
hanging out in the laundry basket with the iPad 6.15.15
3.19.15
3.19.15
3.24.15
3.24.15
4.2.15
4.2.15
4.30.15
4.30.15
5.8.15
5.8.15
6.6.15
6.6.15
6.13.15
6.13.15

Re-branding

I have been thinking about rebranding the last couple of weeks. Changing my name, and moving to wordpress. I’ve been fractured fairy tales since day one. Way back in 2007 when I first started writing, just for fun, as my own personal diary. I don’t really know what I would call myself. Maybe “Alana’s Little Adventures” “Adventures of Alana” “Little Adventures” “Alana Loves Wine” 

I dunno.But I feel like it’s time for a change. 

Visit Alana’s profile on Pinterest.
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No Title

Hey friends!
I wanted to drop in and say hello!
I’ve finally finished the history class that was taking up all my time. Thankfully this semester it wasn’t a #historyclassfromhell. I actually really enjoyed it. It was History of Japan to 1800. It was a lot of fun and I feel I learned a lot. I got to write a paper on Buddhist influence on architecture and a also I wrote a paper on Samurai. Both were a lot of fun. I have a few days before I start my next crazy intense class, Which I am hoping is not that crazy and intense, but with my luck it will be.

We have been doing pretty good overall here in California. It’s almost been a year since we left Montana. It’s crazy to think that we’ve been gone for so long. I look at my Timehop and I am so relieved I don’t wake up to feet of snow, or WAY below freezing temps anymore. In fact the weather here is really nice. I wear T-shirts or tank tops every day. I have a couple hoodies that I save for chilly mornings, but it’s been a nice change.

Not much has been going on besides school . Well and we are all crazy sick right now. Paul brought home cooties from work and it got so bad it developed into pneumonia in Evey. I was really worried at first but I had her followup appointment with her doctor today and she is doing so much better. Now if we can all just kick this nasty cough!

I’ve also started running. I am doing a “walking for fitness” class and I have to wear a fitbit that tracks my movement, the teacher uses that info to see that I am completing our walks. Being sick has really put a damper on that though, I haven’t ran in over a week. Even though the class is called “walking” we are allowed to run, jog or walk, so I decided to take the opportunity to start running. I have a goal of 450 miles by the end of the year. I am somewhere around 60 or 70 miles already so I think I’ll surpass that goal.

I hope I haven’t lost too much of an audience in my absence, I will try to update here more than once a month. Perhaps once a week will be my new goal.
And remember you can find me on Facebook and Instagram, I am always on there.

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School is a tad overwhelming

Man I am really no good at this. 
I have been forever absent again. 
School has taken precedence over blogging, and personal life, and social life, and everything. 
Last week was especially tough. I had a midterm paper to write and I was suffering from some sickness/stress/anxiety/women issues. But I got it done, and turned it in and got an 87%
I am a little over booked this semester. But now that that paper is over I can refocus, until my final paper in 4 weeks.
My classes are weird. It’s hard to explain.
I go to 2 schools, one does regular 16 week semesters. The other does 4 sets of 8 week condensed terms per semester.
So I have 2 classes at the community college here, well one regular 3 credit class and one 1 credit class. (both online)
And then I have 3 classes at the university online. In the first second and fourth terms. So my next class will not start until my first class ends. Thank god, because I have a huge ass paper due at the end of this class (History of Japan to 1800) and I don’t think I could handle starting another class before this one is over. 
Oh and I found out a class I took for fun, ended up filling a needed requirement, not just an elective! More time for activities! WooT! 
But things are going well.
Evey is doing great. She is getting bigger and bigger every day. She is talking up a storm. She is bossy, and determined. She is super smart too. She can count to 15 (most of the time) and she is working on her ABC’s. 
We just had a wonderful visit from Paul’s mom. We did so many fun things, beach trips, a trip to the Zoo, shopping. We had a blast. 
So really besides school, not much is going on here. 
I am thinking of doing another Vlog soon. The next Golden Vlog is up in a couple of days, So I need to film that. Plus I was thinking of doing a hair dye one.
I need to color my hair again, so why not film it? 
So that’s all, I should be studying, but instead I am helping my sister with a paper, and writing here. 
I suppose I should go to bed, or study. 
So Sayonara! 
Oh and Aiko Says Hello! 
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More random college thoughts.

A nice unrelated pretty picture, because I hate making posts without pictures. 

I am finally wrapping up the history class that has been driving me mad. If you have been following me on any other social media you know that it really has taken a toll on me. I have had little life outside of the house for the last 4 weeks, besides attending Japanese twice a week I barely walk out the door. I have dubbed the class #historyclassfromhell. But it’s almost over. My final paper is off to my sister for revisions.

That’s a great thing about having a sister who is in college too, she’s a great spelling/grammar checker. 
But she thinks I use too many commas, screw that, I’ll comma all I want, , , , , , 
anyway. 
I just submitted my last class discussion, and once I polish my paper and write a conclusion I’m done! I hope to submit it by tomorrow afternoon. 
Then I can focus on bringing my Japanese grade back up. My A dropped down to a B the last exam because I am really struggling with verbs, they all sound so much alike! 
I am also trying to plan next semester. I know I am taking Asian Studies online through the University, so I need to pick a another class to take online through the Community College, and I will take Japanese 102 face to face.
Yeah two schools, it gets confusing. But I’ll explain how I am doing that eventually. 
I am so excited to be done with that history class. I have been neglecting so much, household chores, cleaning, my poor child who learned to count to 9 from watching the most freaky cartoon ever made. Seriously Charlie and the Numbers is scary. But she loves it. 


Last night to celebrate finishing my paper, I cleaned and rearranged the play room, so Evey has a little bit more functional place to play and what Thomas the Train. Next week I plan to tackle the upstairs, laundry, bathrooms, Evey’s room still needs to be decorated. I have a whole list of fun things I want to do with all my extra spare time. 

How are we?

I feel like I haven’t really done much of an update in a while. So here goes, an update, in mostly pictures
Evey has learned to be sassy and stubborn
“hey, at least i’m not standing on the table anymore…”

but remains cute as hell

We BBQ a LOT, like almost every weekend for the last month
ymmm Ribs

We have started to think about maybe potty training (someday)

We have breakfast with dinosaurs sometimes 

I am cooking much more frequently than in Montana

The weather is pretty nice 

I am still trying desperately to drop a few pounds

desperately
happy mornings (not too early usually, thankfully)
But all in all we are having a good time, and getting along pretty well in cali. 
It’s not what we expected, but hey, it’s not snowing either, so there’s that! 
hiding those roots
Not even 10am and I have already built a bed #toddlerlife #momoftheyear #isitnaptimeyet
Ikea is going to put me in the poor house, good thing it’s over an hour away and surrounded by crazy traffic, or I would be there every day.
I'm gonna miss my Jeep, but this is way more practical. #toyota #corolla #newtome
 I can’t forget Little Red! We traded in my beloved Hello Kitty Mobile (Jeep Patriot) for a much more gas friendly Toyota Corolla! Also, Yay for no more transmission problems! (briefly mentioned here)
Oh and I am starting school soon. Gotta finish someday right? Two classes start this month, and one next month, and that’s all I’ve got planned until spring. Wish me luck! 

Evelyn is 18 months!

banana face

Evey is a whole year and a half old. She is such an amazing little person. She is running, climbing, trying to jump. She is even talking, but just a little. She can say “mama” “dada” “cat” and “woof”. Woof is the cutest thing ever, it sounds more like woo-woo, it’s adorable.
bubble fun!
She is eating just about everything us big people eat, the only thing I don’t give her is spicy stuff, some things she can handle, but I’m very careful. Evey’s favorite new food is Japanese curry, we just tried it a few weeks ago and she loved it, even ate leftovers! She loves to play outside in her backyard with bubbles or on her slide. She is becoming quite an agile little monkey, climbing up things and impressing us with her smarts every day
Evey naps about once a day for an hour or two so mommy can get some diapers washed. We haven’t started potty training yet, but we are letting her explore what the potty is. Evey is still breastfeeding and Co-sleeping part time. She has her own bed, set up in our room and she can climb into bed with us if she wants. She will normally spend most of the night in her bed and move when daddy gets up for work. She breastfeeds a couple times a day, mostly just for nap and bed time, but we get one or two extra in there depending on her. 
are you watching me?
She has all her teeth except 2 year molars and canines. but one top canine is cutting right now. We try to not watch too much TV, but she really loves Yo-Gabba-Gabba, and Turbo. Really anything with upbeat fun music, she loves. At her 18 month check-up she was 33 inches long and 24 3/4 pounds. She is growing like crazy, especially the last couple months, she has grown two whole shoe sizes and at least an inch or two since we left Montana. 
chubby little tamale